Arthanat, S., Begum, M., Gu, T., LaRoche, D.P., Zhang, D.X., Zhang, N. (2020) Caregiver
perspectives on a smart home-based socially assistive robot for individuals with Alzheimer’s
disease and related dementia. Disability and Rehabilitation: Assistive Technologyhttps://doi.org/10.1080/17483107.2020.1753831
This research investigates how Alzheimer’s caregivers respond to care involving a SAR or
socially assistive robot prototype. The research article reveals Alzheimer’s caregivers in the
study had no experience with smart vacuums, or other household robotics and artificial
intelligence, but did see SAR with promise. Caregiver concerns around effort expectancy,
technology anxiety, and perceived trust was reviewed. The authors are from the Department
of Occupational Therapy, Department of Computer Science and the Department of
Kinesiology at The University of New Hampshire. This would be an interesting article for
Alzheimer’s family caregivers, Occupational Therapists, and those in the field of
Bernstein, A., Merrilees, J., Dulaney, S., Harrison, K., Chiong, W., Ong, P., Heunis, J., Choi, J., Walker, R., Feuer, J.E., Lee, K., Dohan, D., Bonasera, S.J., Miller, B.L., Possin, K.L. (2020). Using care navigation to address caregiver burden in dementia: a qualitative case study analysis. Translational Research Clinical Interventions. Advance online publication https://doi.org/10.1002/trc2.12010
The researchers approached this study using three selected cases. Qualitative methods
such as interviews were used to gather data. Guilt, frustration, patient-related behavior,
depression, and the relationship between the person living with dementia and the caregivers
were the focus points for intervention. Interventions offered by care navigators were
provided over the phone and internet. The interventions were tailored to the needs of
both the caregiver and the person living with dementia. This study demonstrated a role for
engaged non-clinical individuals to address issues related caregiver burden. Further, the
importance of properly identifying the needs of both the caregiver and the person living with
dementia and meeting them with tailored interventions were documented. The authors are
primarily from the University of Southern California. This article may be of interest to
Geriatric Care Managers and family caregivers.
Devos, P., Aletta, F., Thomas, P., Petrovic, M., Mynsbrugge, T.V., Van de Velde, D., De Vriendt, P., Botteldooren, D. (2019). Designing supportive soundscapes for nursing home residents with dementia. International Journal of Environmental Research and Public Health, 16(24), 4904. https://doi.org/10.3390/ijerph16244904
This research explores opportunities to impact mood in individuals with dementia,
such as feeling of safety, with specific sound stimuli. The influence of voice and music are
discussed along with considerations around altered auditory cognition due to dementia.
Their study shows that changes in mood, feelings of safety, and responses can be the result
of soundscape design. The researchers are from Ghent, Belgium and have studied in the areas
of Occupational Therapy, Internal Medicine, and Information Technology. This article may
be of interest to Recreational and Occupational Therapists.
Gerritsen, D.L., van Beek, A.P.A., Woods. R.T., (2019). Relationship of care staff attitudes with social well-being and challenging behavior of nursing home residents with dementia: a cross sectional study. Aging and Mental Health, 23(11), 1517-1523.
Staff who had hopeful attitudes across 15 facilities resulted in residents with less challenging
behavior and more social well-being. The staff included nurses, aides, recreational
therapists, and health care educators. The researchers are with the Institute for Health Services
Research in the Netherlands where the quantitative study was conducted. This article might
be of interests to educators and administrators in long term care facilities.
Hawkins, B.L., Ramshaw, G., Hooker T., & Walker, K., (2020). Creating football memory
teams: development and evaluation of a football-themed reminiscence therapy program.
Therapeutic Recreation Journal, 54(1), 32-47.
This article focuses on the benefits of a themed reminiscence, which is a non-pharmacological
intervention therapy program for individuals with dementia receiving assisted living services.
The reminiscence therapy sessions included Going to the Game, Stadiums, Tailgating,
Famous Games, Famous People, and Traditions. Measure of quality of life and cognition
were used to evaluate the Program. Statistically significant improvements were found in
quality of life. The researchers are all from Clemson University. Their program and findings
will be especially useful to Certified Therapeutic Recreation Specialists.
Kim, D., (2020). The effects of a recollection-based occupational therapy program on Alzheimer’s disease: a randomized controlled trial. Occupational Therapy International, 2020, 1-8
A statistically significant difference was found in cognitive function, reduced depression, and
enhanced quality of life for individuals experiencingb mild stage Alzheimer’s disease after
participating in an Occupational Therapy Program. The experimental group was compared to
a control group participating in the normal day to day activity program provided at a day
care center. The Occupational Therapy program focused on non-pharmacological
interventions including horticulture, physical activities, music, art, and instrumental
activities of daily living. The 24 sessions were limited to an hour each but were held 5 times
a week, the author is an Occupational Therapist and researcher at Cheongju University in
South Korea. This article will be of interest to Recreation Therapist, and Occupational
Therapists as well as family Care Partners.
The researchers selected 107 articles using specific criterion to screen. Six were used for the
qualitative synthesis. Most of the data for the studies was collected in Scandinavian
countries along with The United States, and Italy. The studies focused on behavior, cognitive
function, physical health, and balance. Patients appeared calm content and relaxed with a
dog. Feelings of depression agitation, aggression, and anxiety were reduced. The researchers
are from the Czech Republic. This research may be of interest to Recreation Therapists,
Administrators, and family caregivers.
Lee K., Puga F., Pickering, CEZ., Masoud, S.S., White, C.L., (2019). Transitioning into a caregiver role following a diagnosis of Alzheimer’s disease or related dementia: A scoping review International Journal of Nursing Studies (2019).
Twenty nine studies were reviewed having a variety of methodologies, study locations, and
findings. This manuscript describes the challenges identified across 23 studies, initial
reactions across 9 studies, emotional responses across 14 studies, changes in relationship and
responsibility across 6 studies , the need for information across 14 studies, support across 11
studies, interventions across 5 studies, assistance in planning care across 7 studies. The
authors have backgrounds in nursing and hold faculty positions at the University Level. This
manuscript would be of interest to researchers and to personal and professional caregivers
seeking to understand common experiences in the process of transitioning into a caregiver
role through numerous studies.
Levy, J.A. (2013). Activities to do with your parent who has Alzheimer’s dementia. Create Space Independent Publishing Platform.
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This book is a collection of defined activities a caregiver may implement with an individual
diagnosed with Alzheimer’s disease. While the activity suggestions are for the most part
simple, excellent implementation suggestions are given. Implementation expenses would be
low and access to supplies easy. The author is an experienced Occupational Therapist and
has family caregiving experience as well. This book is a good choice for professional
caregivers in a daycare or long term care setting or to family caregivers seeking to enhance
the day to day experience of their loved one.
Mace, N.L. & Rabins, P.V. (1981). The 36 -Hour Day. The John Hopkins University Press.
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The 36-Hour Day serves as a guide for both health care professionals and family caregivers
of those with Alzheimer’s disease or other dementias. Behaviors, the search for medical help,
activities of daily living, self- care, and living arrangements are a few of the important topics
addressed. Important financial and legal information are included in the comprehensive
work. This publication has a 30 year history of providing useful information to family care
partners. An attempt is made to provide information with the goal of improving the lives of
those living with dementia and their care partners. The authors include a physician and a
medical assistant who offer practical advice and case examples to support the reader on their
difficult path through dementia. This book is ideal for the newly diagnosed and family
members of individuals newly diagnosed with the disease.
McGrattan, A.M., McGuiness, B., McKinley, M.C., Kee, F., Passmore, P., Woodside, J.V., McEvoy, C.T. (2019). Diet and inflammation in cognitive aging and Alzheimer’s disease. Current Nutrition Reports 8:53-65. https://doi.org/10.1007/s13668-019-0271-4
The researchers discuss the growing evidence that anti-inflammatory diets may have a
protective effect related to cognitive decline in elders. Most research attention in around the
Mediterranean Diet and the DASH Diet. They suggest that using neuroimaging in related
studies would advance understanding of the effects of dietary modifications in the ageing
brain. The researchers are primarily from the Queens University in Belfast. This article
might be of interest to Geriatric Physicians, Gerontologist, individuals living with dementia
and their caregivers.
Micaela, M., Tonon, C., LaMorgia, C., Testa, C., Carelli,V., Raffaele, l. (2018). Effect of light treatment on sleep, cognition, mood, and behavior in Alzheimer’s disease: a systematic review. Dementia and Geriatric Cognitive Disorders. 46 371-384. https://DOI:10.1159/000494921
Newmark, A. and Geiger, T. (2014). Chicken Soup for the Soul Living with Alzheimer’s and Other Dementias. Chicken Soup for the Soul Publishing.
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This book includes 101 short stories regarding Alzheimer’s caregiving experiences. The
themes include, but are not limited to, humor, children, grandparents, acceptance, empathy,
strategies, choices, and making connections. The stories are written by many caregivers
expressing their unique and heartfelt experiences with great authority. Because they are true
stories written by caregivers, they have the potential to provide comfort to the reader. The
individual stories are short and therefore perfect for the life of a busy family or professional
caregiver. The collection is assembled in a thoughtful and professional manner and may serve
as comfort and education to family and professional care partners. This work is well placed
as a support for both family and professional caregivers.
Orsulic-Jeras, S., Whitlatch, C.J., Szabo, S.M., Shelton, E.G., Johnson, J. (2019). The SHARE program for dementia: implementation of an early-stage dyadic care-planning intervention. Dementia 18(1). 360-379. https://doi:10.1177/1471301216673455
The investigators review a SHARE (Support, Health, Activities, Resources, and Education)
intervention to facilitate care-planning using the input from persons living with dementia in
the early stage and their family caregivers. Persons living with dementia were willing and
able to reveal their care values and preferences, which the family caregivers then
acknowledged. Benefit themes included education, communication, support, resources,
satisfaction and care-planning. The researchers are from Cleveland State University,
Department of Psychology and The Benjamin Rose Institute on Aging. This article may be of
interest to newly diagnosed individuals and their family care-givers.
This article reviews the interest of Psychologists in caregiver issues. The authors review the
literature around the impact caregiving may have on the caregiver and a review of various
interventions researched. These reviews provide the latest insights into what the current
literature reveals as impactful. The authors refer to three groups of caregivers but focuses on
middle age adults, primarily women, caring for older adults. A review of the trajectory of
caregiving, neglect, and risk factors for adverse outcomes also shine a light for professionals
serving family caregivers. The authors come from the University of Pittsburgh, Cornell
University, The Pennsylvania State University and Yale University. This article is well placed
as information for those serving caregivers but may be of interest to others.
Sheung-Tak, C., Mak, E., Lua,R.W., Ng,N.S., Lam, L.C., (2016). Voices of Alzheimer caregivers on positive aspects of caregiving. The Gerontologist 56(3) 451-460.
Fifty-seven primary caregivers from Hong Kong, providing at least 14 hours of care per
week provided data for this study. Over an 8 week period of time they audio recorded
positive aspects of their caregiving activities. The data revealed ten general areas or themes
such as feelings of gratitude, a sense of purpose, an increase in their patience, and learning to
let go for example. Finding positive themes in the experience of Alzheimer’s caregiving is
useful in treating negative outcomes of caregiving. The authors suggest there is a need to
develop strategies to promote the positive aspects of caregiving. The authors hold advanced
degrees and from the Hong Kong Institute of Education, Norwich Medical School,
University of East Anglia, and the Chinese University of Hong Kong. This
article may be of interest to Alzheimer’s family caregivers as well as clergy, social workers,
Shinae, C., Minjung, K., McDonough, I.M. (2019). Do older adults with Alzheimer’s disease engage in estate planning and advance care planning preparation? Aging and Mental Health, 23:7 872-879,
The authors analyzed 10,273 individuals diagnosed with Alzheimer’s over the age of 65
within the United States. They used the 2012 Health and Retirement Study. They had an
interest in advanced care planning including a durable power of attorney for health care, a
written living will, and a valid will. They detail that a durable power of attorney for health
care and a written living will, were significantly associated with a diagnosis of Alzheimer’s
disease. It was interesting that factors such as being male, a minority, and having a lower
socioeconomic status influenced engagement in advanced care planning activities. This
article might be of interest to individuals with early stage Alzheimer’s disease and
family care partners as well as attorneys, social workers, and physicians. The authors are
educated at the Ph.D. level and are well published.
The participants in this study were interviewed to investigate if churches were meeting the
social and spiritual needs of those impacted by Alzheimer’s disease. One of the most
valuable pieces of information in the article was a Guideline for Responding to the Needs of
Caregivers in the Congregation. It was found that when properly prepared churches can and
do offer valuable support. The author holds a Ph.D. and is with Messiah College. This article
would be valuable to those seeking sources of support for themselves or their clients.